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Tracer MeThodology

Using Mock Tracers to Evaluate Care of Patients with Intellectual Disabilities, Part 1

By Sarah H. Ailey PhD, RN, CDDN, APHN-BC; Beth-Anne Christopher MSN, RN, CNL; Kathleen Ramson, MSN;

Nicole Schmidt, MSN; and Alyssa Lapin, MSN


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T

his is the first part of a two-part series describing a mock tracer performed in a major academic medical center in

Chicago by hospital staff. The second part of this series, detailing how the hospital made improvements in pain assessment and management, the environment of care, transitions of care, and other key areas, will appear in the January 2016 issue of this newsletter. The second part will also include a tool used by the organization during its mock tracer.

Providing quality care, treatment, and services to each patient in the acute care setting is a goal of health care organizations. A 2010 Joint Commission white paper, Advancing Effective Communication, Cultural Competence, and Patient- and Family-Centered Care: A Roadmap for Hospitals, notes that hospital quality of care and outcomes differ by race, ethnicity, language, disability, and sexual orientation.1 Health care organizations are responsible not

only for addressing the clinical aspects of the patient’s needs, but also their unique needs based on the patient’s personal and demographic characteristics.1,2

One way hospitals can evaluate their performance in meeting the specific needs of various patient populations is to conduct mock tracers that follow the patient’s experience through the health care process. When Joint Commission surveyors visit hospitals, they often trace patients from high-risk, vulnerable populations in order to evaluate the

effectiveness of an organization’s policies and procedures and processes of care.3 Often the tracer follows a patient who

has used multiple complex services and uses the evaluation of actual patients as the framework for assessing compliance to standards along with coordination and communication among disciplines and departments.2,4

Joint Commission–style mock tracers conducted independently by hospitals are useful tools for ongoing evaluation of patient care and the associated services, processes, and procedures. Hospitals find it useful to conduct mock tracers with patients who are members of a high-risk patient population, who are fragile, unstable, and/ or vulnerable. Tracing the care of these patients may indicate

Using a multidisciplinary team is the most effective way to conduct a mock tracer.


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gaps in processes and procedures that can be addressed and reduce inequities in care. Mock tracers also provide nurses and other health care professionals with meaningful examples of how their actions affect patient safety and the

quality of care, and help to identify areas of noncompliance with standards, policies, and procedures.5

Patients who have intellectual disabilities (ID) are a vulnerable population, and hospitals should evaluate the care provided to these individuals. Despite 20 years of research and government initiatives, many patients with ID continue to have poor hospital experiences.6 Persons with ID have higher rates of hospitalization for ambulatory sensitive conditions, higher rates of days in intensive care for some conditions, and higher rates of hospital complications than the rest of the population.6,7 Issues that affect the experience of these patients include the following6,8:


Identified strengths and gaps with care are detailed as follows (additional information will appear in Part 2 of this article in January 2016).


Communication

With specific patients on hospital units, the majority of staff could identify how they adjusted and tailored

communication to meet the needs of patients. It was also easy to navigate the EMR to chart tailored communication. Staff reported breakdowns in communication due to insufficient information before planned admission. For example, a nurse discussed difficulties with an admission

in which the staff were informed before admission that the patient had ID but not that the patient had sensory difficulties with lights and noise. The communication gap

in conveying the information led to a difficult experience for not only the patient but the health care staff as well. Staff reported that had they known, they would not have had the


(continued on page 6)

Tracer Methodology 101

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patient come to an area with bright lights but would have had the patient enter directly to a quiet area with dimmed lights.

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Staff also noted communication breakdowns during transitions of care within the hospital. One nurse stated that she would prefer to get as many details about the patient as possible, such as a review of systems and all other pertinent information about the patient, including any specific needs related to managing the environment for sensory issues and issues whether ambulatory or not. TS



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References

  1. The Joint Commission. Advancing Effective Communication, Cultural Competence, and Patient- and Family-Centered Care: A Roadmap for Hospitals. Oak Brook, IL: Joint Commission Resources, 2010. Accessed Nov 10, 2015. http://www.jointcommission.org/roadmap_for_hospitals/.

  2. Joint Commission Resources. The Joint Commission Survey (Part 1): Maximizing Tracer Activities—A Dialogue with Surveyors. Jun 21, 2012. Accessed Nov 10, 2015. http://www.jcrqsn.com/docs/resource

    _guide/demorgjune2012.pdf.

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  3. The Joint Commission. (2011). More Mock Tracers. Oak Brook, IL: Joint Commission Resources, 2011.

  4. Advance Healthcare Network. Documentation Matters with Tracer Methodology. Murphy-Knoll L. Mar 26, 2007. Accessed Nov 10, 2015. http://healthinformation.advanceweb.com/Article

    /Documentation-Matters-with-Tracer-Methodology.aspx.

  5. Murphy-Knoll L. Nurses and the Joint Commission tracer methodology. J Nurs Qual Care. 2006 Jan–Mar;21(1):5–7.

  6. Iacono T, et al. A systematic review of hospital experiences of people with intellectual disability. BMC Health Serv Res. 2014 Oct 25;14:505. Accessed Nov 10, 2015. http://www.biomedcentral.com/content/pdf

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    /s12913-014-0505-5.pdf.

  7. Ailey SH, et al. Hospitalizations of adults with intellectual disability in academic medical centers. Intellect Dev Disabil. 2014 Jun;52(3):187– 192.

  8. Webber R, Bowers B, Bigby C. Hospital experiences of older people with intellectual disability: Responses of group home staff and family members. J Intellect Dev Disabil. 2010 Sep;35(3):155–164.

  9. Lewis S, Stenfert-Kroese B. An investigation of nursing staff attitudes and emotional reactions towards patients with intellectual disability in a general hospital setting. J Appl Res Intellect Disabil. 2010 Jul;23(4): 355–365.


    Sarah H. Ailey, PhD, RN, CDDN, APHN-BC, is a professor of Community Systems and Mental Health Nursing at Rush University College of Nursing, Chicago.


    Beth-Anne Christopher, MSN RN, CNL, is an assistant professor in Adult Health and Gerontological Nursing at Rush University College of Nursing, Chicago.


    Kathleen Ramson, MSN; Nicole Schmidt, MSN; and Alyssa Lapin, MSN: Finishing the mock tracer tool and evaluating the overall process were completed in partial fulfillment of their Master’s of Science in Nursing degrees.


    The authors would like to acknowledge Amanda Sandoval, MSN; Bridget Kern, MSN; Lyudmila Boron, MSN; Daniel Chmieliewski, MSN; Renee Sandusky, MSN; and Keren Talor, MSN, for their contributions in developing and conducting the mock tracer.

  10. Bradbury-Jones C, et al. Promoting the health, safety and welfare of adults with learning disabilities in acute care settings: A structured literature review. J Clin Nurs. 2013 Jun;22(11–12):1497–1509.

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